Jesy Nelson sobs in heartbreaking video as she hears twin daughters’ prognosis
Former Little Mix star Jesy has shared the heartbreaking moment she was told her twin girls have been diagnosed with spinal muscular atrophy as she vows to fight for her kids
Jesy was seen sobbing as she was told the heartbreaking news(Image: Jesy Nelson/Instagram)
Jesy Nelson has bravely shared the heartbreaking moment her twin daughters were diagnosed with the rare genetic condition SMA. She was seen breaking down as she said: “I don’t know how I’m going to do this.”
In the video, a doctor could be seen telling her: “The genetic testing came back positive for Spinal Muscular Atrophy”. At that moment, the star was seen burying her face in her hands and saying: “I can’t believe this is happening.”
The devastating scenes were filmed for her new documentary, Jesy Nelson: Life Changing. The Amazon Prime Video crew were there to document the former Little Mix member’s reaction to the devastating news as she was forced to face the reality of the situation.
Medics confirmed the babies’ tests had returned positive results. According to the NHS, SMA is “a rare genetic condition that can cause muscle weakness”. The health service states the condition deteriorates over time, according to the Mirror.
She admitted her entire world has been turned upside down, and she was expected to find the diagnosis difficult to cope with. Jesy was shown with her face buried in her palms as she states: “I don’t know how I’m going to do this. I feel like I’m going to be heartbroken for the rest of my life.”
However, she insisted she won’t allow others to go through the same pain and is now campaigning for laws and guidelines around SMA screening. Since their diagnosis, she has kept her fans about her kids’ conditions on social media ahead of the documentary which airs later this month.
In the caption for the trailer, Jesy penned: “I’m really not sure where to start with this one. All I can say is that I urge everyone to watch this documentary.
“It’s the most heartbreaking series I’ve ever had to make, but it’s one that needed to be made if we’re ever going to see real change. This is only a small glimpse into what my girls have to go through every single day.
“It’s the reality that so many children born with SMA have to endure and this is only the beginning of their lives. I truly hope this helps people understand why the heel prick test and treatment from birth are so incredibly vital.
“Early diagnosis can change EVERYTHING. I’ll keep saying it until no family has to experience this again: no future babies born with SMA should have lives that look like this.”
She concluded with an appeal: “Please if you watch one thing, let it be this: “Jesy Nelson: Life Changing” on Prime Video UK. Streaming from July 17th.”
Last month, Jesy was at Westminster as MPs discussed whether to screen all newborns for spinal muscular atrophy. Her petition calling for all newborn babies to be tested for spinal muscular atrophy garnered more than 150,000 signatures.
For the latest breaking news and stories from across the globe from the Daily Star, sign up for our newsletters.
